When I decided to start this blog, I knew that I wanted to change people’s thoughts and perceptions on how they saw people with physical disabilities. However, I did not know how much I, as well as some of those close to me, would be put in situations where I would actively be learning as well, and to be honest, it has been a hell of a week with being put to the test.

Throughout the week I got to see first hand how naïve people could really be when it comes to viewing people who have a physical difficulty, and all in different ways. First, was an incident that dealt with my roommate where someone had asked her about me and assumed that she was my caretaker. Now, this is not the first time that this has happened. This is super frustrating for both her and I because she knows I am capable of doing a lot of things by myself, and I pride myself in knowing that I can do these things.

Second, I had a job opportunity come up that I took advantage of, but as I was talking to the person I would be working for, their mood instantly changed when I told them that I was disabled and used a walker. Their response basically said that they were sorry that I had a “terrible disease.” This no doubt upset me tremendously because I do not see how it is a terrible thing in the least. I mean, good lord, I’m not going to infect anyone if I am in the same vicinity as the people I am around.

Lastly, and this is a constant struggle that I have to deal with, I came in contact with someone a few nights ago while I was at a church function who saw my walker and asked if they could pray for healing for me so that I could walk without the walker. At this point you can only imagine that I am now rolling my eyes and getting super frustrated. On top of that situation I was dealing with a building that was hard for me to get into with stairs that had no railings (or ramps for that matter), and someone once again asking my roommate questions that I could have answered myself.

Over the next couple of weeks I want to delve into these situation a little bit deeper because this is not the first time that these situations have happened. Although they can be super frustrating, every single one of the situations have taught me valuable lessons over the years and I am looking forward to sharing them with you over the coming weeks.

8 thoughts on “#TheStruggleIsReal

  1. I was very saddened to hear about the church incident—to see how there are still people who think a short prayer can cure us of our cerebral palsy is mindboggling, to say the least. And never ever should someone in the workplace act as though a walker trumps your intelligence for the job you will be taking on. I applaud your bravery in making such incidents public.
    As for the roommate incident, that really struck a cord with me; for I too have faced similar issues. Not in that they have felt as though they are my “caretaker,” but that because I confided in them the existence of my disability and the struggles I face as a result, they feel the need to tell it to THEIR friends as the primary reason I don’t go out and party/drink every night, almost as if my disability alone is the reason I struggled with depression and anxiety.
    Keep up the wonderful work, Katy, and please know that you are indeed resonating with individuals in the CP/Hemiparesis community.

    Liked by 3 people

    1. Thanks Ashlee! I will have more bout the church incident in another post because believe it or not I have dealt with this type of thing for years and it still irks me to this day. I have a pretty awesome roommate who pushes me to do things that I didn’t think I could do because she believes in me and that I can do it, so I’m pretty lucky to have a friend like her. 🙂


  2. It is amazing how naive people can be. Sounds like an incredibly frustrating experience. I love that you are writing about it and trying to raise awareness, though. Just stumbled across your blog and it looks really wonderful. Even if it doesn’t always seem like it, your words are being heard. 🙂
    Also, I don’t know if you are familiar with the blog SeeMeNotCp ( https://seemenotcp.wordpress.com/ ), but you might be interested in checking it out. If you are looking for bloggers with similar experiences and interests, Chelle is extremely passionate about disability awareness.

    Liked by 1 person

    1. Thank you Britta! It can definitely be a very frustrating experience, but I know that if I didn’t go through this I wouldn’t be able to help others who are going through the same thing. I just checked out her blog and loved it and will be reaching out to her. Thank you for giving me her blog! I hope you have a wonderful rest of your weekend. 😊

      Liked by 1 person

      1. You’re welcome! You definitely learn a lot from such experiences and it’s awesome that you can share them with others to spread awareness. I’m looking forward to your future posts, for sure. 🙂
        I’m glad you love her blog! Glad I could recommend it to you.

        Liked by 1 person

      2. I hope to have a new blog out by Wednesday of this coming week about healing and how people would push me to pray that I would be healed and how much I struggled with what everyone was saying, so be on the lookout 🙂

        Liked by 1 person

  3. Oh gosh! The church situation is all to familiar to me! I don’t even know how to react. I used to graciously accepted their offer, but as soon as they spoke a word about my “affliction” it all went downhill. I think that’s a big reason why I don’t attend religious services much anymore. I hate feeling like the pet project. Wow, I’m just realizing how much I relate to what you talk about here. It’s really difficult to think about… Thank you for sharing your personal experiences. XO Dani

    Liked by 1 person

    1. Thank you Dani for your kind words. I find myself not really going to church functions that much anymore either. I’ll go, but I’m really picky on where I go. Luckily, I live in LA so there are a lot of churches around that I can pick and choose from when I want

      Liked by 1 person

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